The truth about Congenital Adrenal Hyperplasia

According to the Great Ormond Street Hospital website, 'Congenital adrenal hyperplasia is group of inherited conditions that are present at birth (congenital) where the adrenal gland is larger than usual (hyperplasia). In CAH, the body is missing an enzyme (chemical substance) that stimulates the adrenal glands to release the cortisol hormone. Lacking this hormone means …

Continue reading The truth about Congenital Adrenal Hyperplasia

Figuring out dosing…

The difficult part of having Salt Wasting Congenital Adrenal Hyperplasia is working out your steroid dosage. Generally young people and adults with this condition (or similar problems with adrenal insufficency) have their doses figured out around age 15/16 and that's the way it stays! Me however? Nope! Unusually, I'm actually requiring a higher dose than …

Continue reading Figuring out dosing…