The truth about Congenital Adrenal Hyperplasia

According to the Great Ormond Street Hospital website, 'Congenital adrenal hyperplasia is group of inherited conditions that are present at birth (congenital) where the adrenal gland is larger than usual (hyperplasia). In CAH, the body is missing an enzyme (chemical substance) that stimulates the adrenal glands to release the cortisol hormone. Lacking this hormone means …

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The things you’re never told about when you start university

After meeting with my Senior Section group last night and being asked about how university is going, it got me thinking about the things that I wish I'd have been told when I first moved into uni in September. When you attend open days, issues are always skirted over because they're worried they're going to …

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Figuring out dosing…

The difficult part of having Salt Wasting Congenital Adrenal Hyperplasia is working out your steroid dosage. Generally young people and adults with this condition (or similar problems with adrenal insufficency) have their doses figured out around age 15/16 and that's the way it stays! Me however? Nope! Unusually, I'm actually requiring a higher dose than …

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